Tunu’s Video Story!
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Wanessa’s Story
Reaching Great Heights – Wanessa’s Story Wanessa, is 12-year-old girl who is full of joy and life. We view her diagnosis of Down syndrome as a gift and an advantage in life, which does not limit her in any way. Wanessa’s dictionary does not include the words “I can’t”. Perserverence, a key feature of Down …
Julieta’s Story
En julio del 2010 quede embarazada, todo iba bien hasta que en la semana 34 de embarazo me detectan liquido amniótico aumentado, yo me atendía en una salita de barrio hasta ese momento no me decía nada la obstetra, un médico particular llamado warton, me mando hacer un scan fetal, de ahí solo se detecta …
Malawi CARES…
“In Malawi we care about birth defects and we help refer affected families to services!” Malawi Hospital-based Surveillance System
Madrid’s Association of Spina Bifida (AMEB)
Madrid’s Association of Spina Bifida (AMEB) gives us their testimony: When we talk about Spina Bifida, we are talking about real people, with names and surnames. For us, it is essential that everybody knows what Spina Bifida is. We want that the disability world is well known by everyone, to finish with current prejudices and …
A successful story of a NGO in India helping special children
The occurrence of a shocking incident sometimes makes you stronger and inspires you for Noble task. As it is true of “Sadhna Society” for mentally handicapped where overwhelmed with the deep feelings for their own Children, few parents of children with intellectual disability got self-motivated to serve similar children in society and joined their hands …
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Working for the Spina Bifida and Hydrocephalus community since 1979!
The International Federation for Spina Bifida and Hydrocephalus (IF) was founded by people with Spina Bifida and Hydrocephalus (SBH) and their families in 1979, and has continued to grow and flourish as the international umbrella organisation for those living with SBH and their families. Currently, IF’s membership consists of 60 SBH associations in Africa, Australia, …
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Fortifying Grains Prevents Birth Defects of the Brain and Spine
In 2015, an estimated 35,500 birth defects of the brain and spine were prevented in 58 countries which implement mandatory programs to fortify flour with folic acid. That is an average of 97 healthier babies every day! Unfortunately, the total only represents 13% of all birth defects that might be prevented with enough folic acid. …
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Our cultural expression: Murga “Los Rengos del Bajo”
APEBI-Asociación para Espina Bífida e Hidrocefalia-is an Argentinian association devoted to improving the life of persons with spina bifida and hydrocephalus. It was founded in 1975 by a group of parents, and has become a professional DPO whose vision is based on fostering equality. Among a great number of local and international projects, in 2000, …
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In Rome a team of ladies gives cooking lessons to young adults with Down Syndrome
Every Monday morning, six volunteers of the AIPD – Italian Association of Down Syndrome Persons – hold a basic cooking class for a group of seven adults with Down Syndrome who live on their own in a family home. The lesson consists of creating simple pasta or rice, meat or fish dishes, savory pies and …
Read more “In Rome a team of ladies gives cooking lessons to young adults with Down Syndrome”